
Here are the books and links that I have found helpful in understanding fibromyalgia and how to get started on the guaifenesin treatment.
Dr. St. Amand and Claudia’s book is necessary for you to get started on the guai treatment. It is best if you own the book as you will need to refer to it quite a bit when first starting. If you don’t have the means to purchase it, at this time, check your library and your inter-library loan services. That’s where I first found the book. The revised and updated book came out in January 2006.
"Revised and Updated What Your Doctor May NOT Tell You About Fibromyalgia"
by R. Paul St. Amand, M.D., and Claudia Craig Marek
If you don’t have someone, in your area, that can map the progress you are making, you may want to get the following to help you understand about the importance of mapping muscles when on the protocol. These can be purchased at the fibromyalgiatreatment.com website:
"The Guaifenesin Protocol DVD"
This DVD is a duplicate of the videotape, including the mapping
demonstration.
"The Guaifenesin Protocol Videotape"
The
Diagnosis and Treatment of Fibromyalgia & Hypoglycemia,
Including the Mapping Demonstration
length: 75 minutes
by R. Paul St. Amand, M.D., and Claudia Craig Marek
"The Mapping Demonstration Videotape"
length: 15 minutes
by R. Paul St. Amand, M.D.
Books
Other books that are good but not necessary to get you started:
"What Your Doctor May Not Tell You About Fibromyalgia Fatigue"
by R. Paul St. Amand, M.D., and Claudia Craig Marek
"The First Year--Fibromyalgia: An Essential Guide for the Newly Diagnosed"
(The First Year Series)
by Claudia Craig Marek
Links
Dr. St. Amand and Claudia’s website:
http://www.fibromyalgiatreatment.com/resources-links.htm
Helpful links on their site:
http://www.fibromyalgiatreatment.com/EasyQuickLinks.htm
Dr. Devin Starlanyl’s website:
a comprehensive listing of fibromyalgia symptoms
http://www.sover.net/~devstar/phsympt.htm
Doctors
Dr. St. Amand's office is located at:
4560 Admiralty Way, Suite 355
Marina del Rey, CA 90292
For appointments call (310) 577-7510 or fax (310) 821-0664.
For a list of practitioners who have stated that they are familiar with the Guaifenesin Protocol go to http://www.fibromyalgiatreatment.com/doctors.htm You may also find Mappers that may be within distance.
On-line Support Groups
GUAIGROUP:
This is the support group where Claudia and the Administration Ladies answer questions:
http://www.fibromyalgiatreatment.com/newsgroup.htm
Yahoo support groups:
http://health.groups.yahoo.com/group/guaifenesin/
http://health.groups.yahoo.com/group/Christian_Guaifenesin_Recovery_Group/
Support and Recovery Groups
Arizona
Flagstaff, Arizona - We're going to meet on the second Saturday of the month, with no meeting in December. Please contact us at Barbara@soderblom.net if interested.
Phoenix, Arizona - Phoenix and Northern Arizona Fibromyalgia Recovery Group meets the third Saturday of every month (except July and December) at 1:30 pm at 3814 E. Mallory St., Mesa. Each month there is a guest speaker who shares information on such topics as Salicylates, Diet, Exercise, Sleep, Supplements & Medications, Mind & Body, Relationships, and Massage. Those new to Dr. At. Amand's guai protocol should arrive at 1:00 pm for an introductory video presentation. An experienced mapper will be in attendance who has offered the group a special rate of $25 per map. If you wish to have a mapping done, have questions or need directions to the meeting location please call 480-832-5733 or e-mail Brenda at brendafrandsen@cox.net
Arkansas
Sherwood, Arkansas - The Guaifenesin Support Group meets the second Wednesday of each month at 11:00 a.m. at the Olive Garden restaurant, 2943 Lakewood Village Dr., North Little Rock, AR. Please contact: Kathy Olsen (501) 835-0753, e-mail tweety@cybersoulsisters.com or Mary Jo Wicks (501) 834-8401
California
Anaheim, California - Fibromyalgia Support Group of North Orange County meets the last Thursday of every month at 6:30 p.m. Location: Kaiser Permanente Hospital, 8th Floor Conference Room D,441 N. Lakeview Ave. Anaheim, CA Contact Phyllis (714) 701-0505
Cathedral City, California - meets on the second Wednesday of every month. We welcome anyone interested. Contact is Paulette Fellner (760)-774-7277 (760)-774-7277 or desertfibro@yahoo.com
Fresno, California - please contact Cheryl Bauer 559-291-8098 or gpbauer@cvip.net.
Los Angeles, California - The Los Angeles Fibromyalgia Recovery Group meets the 2nd Thursday of every month in Marina del Rey. Contact Claudia fmsnurse@aol.com 310-577-7510 or Lisa LBalov@aol.com.
Morgan Hill, California - South Valley Fibromyalgia Recovery Support Group meets the 2nd Wednesday of every month, at 10:30 am (10 am for those new to the guaifenesin protocol). Heritage Bank of Commerce conference room, 18625 Sutler Blvd., Morgan Hill, CA. 95037(off Cochran Rd.), For more information or directions contact Susie Smith 408-779-2878 or email - trsusie@charter.net
Palm Springs, California - If interested please contact Geri Vinar at 760-328-4640
San Diego, California- San Diego Hope and Recovery Group (fibromyalgia, chronic fatigue & other related disorders). We support your journey towards wellness through the guaifenesin protocol. Please contact Janis for information: Phone # 208-325-9292 or e-mail: hope4recovery@frontiernet.net
Colorado
Denver, Colorado - The Denver group has been temporarily suspended. If anyone needs personal counseling and encouragement, contact Betty at BJAtkinson@juno.com
Colorado Springs / Monument, Colorado- contact Lorna Searle, (719) 481-3735 or lornasearle@yahoo.com
Florida
Avon Park, Florida - South Central - We invite those who live (or are visiting) in south-central FL to join us as we start a new support group in Avon Park, FL. We will be focusing on the guaifenesin protocol as written by Dr. St. Amand. We will be meeting the third Wednesday morning at 10:00 a.m. at the Union Congregational Church in the church library. The address of the church is 106 N. Butler Avenue. Contact Julie Ball at julie56@strato.net or by phone 863.386.5017.
Miami-Dade County, Florida - The Fibromyalgia/Chronic Fatigue Syndrome Recovery on Guai Group of Miami-Dade County exists to help people learn about the Guaifenesin Protocol. If you are interested please contact Micki Lewis at micki@lewis.org or 305-255-7955).
Palm Beach County, Florida - Our meetings are usually held in Jupiter, on the second and fourth Friday of the month. Holidays may interrupt the schedule so please call for assurance of the date and directions. Newbies arrive at 9:15 A.M. to watch Dr. St. Amand's DVD. "Regulars" arrive at 10:15 A.M. to share information and testimonials. We are a loving, courageous and positive group. POC: Bonnie at 561-575-1978 h. or 561-512-1747c. Please leave a very clear name and telephone number, answering machines can sound garbled.
Georgia
Loganville, Georgia - The North Georgia F.R.O.G.s Support Group meets at the Bold Springs Methodist Church at 2:00 pm on the second Saturday every month, except December. The meeting is held in the small white education building next to the church. It is located on Bold Springs Church road, off of hwy 81 in Bold Springs, Walton Co. GA. Everyone from the Atlanta, Snellville, Loganville, Monroe, and Athens areas are welcome. Please contact Stephie at fireyes@bellsouth.net.
Hawaii
Kauai, Hawaii - IFOG of Kauai (Informed Fibromyalgics reversing On Guai) Guaifenesin Support Group supports the journey into wellness through the guaifenesin protocol. The group meets the second and fourth Saturday of every month, 10:00 AM to noon, followed by lunch and maybe a swim in the pool. Contact Miki Kaipaka at Kaipaka@aol.com for information. Miki Kaipaka sponsors an annual gathering on Kauai for fibromyalgics. Her 4th Annual Global Guaiers Gathering on Kauai was held on March 12 & 13, 2004. She is responsible for all content presented, which may not reflect the Guaifenesin Protocol as written by R. Paul St. Amand, M.D. The annual gathering is a celebration for fibromyalgics, not a scientific conference, and is not affiliated with or sponsored by the Fibromyalgia Treatment Center.
Idaho
Donnelly, Cascade, McCall, Idaho - Hope and Recovery Group (fibromyalgia, chronic fatigue & other related disorders). We support your journey towards wellness through the guaifenesin protocol. Please contact Janis for information: Phone # 208-325-9292 or e-mail: hope4recovery@frontiernet.net
Illinois
Chicago, Illinois - Northwest Chicago Guai Group has meetings that are an open format for group participation. All newbies are welcome. Feel free to bring friends or family members who would like to understand the guai protocol and how others are coping with the illness. Contact Jody Winfield at chicagoguaigroup@comcast.net for information on the meeting schedule
Swansea, Illinois - Metro Area Guai Support Group meets on the 3rd Sunday of every month from 3 p.m. to 5 p.m. unless it is a holiday, then we meet the following Sunday. Our location is the Emerald Day Spa, 1 Emerald Terrace, Swansea IL. (This is approximately 15 minutes from downtown St. Louis, MO, on the Illinois side of the river). For more information, or directions, call Sandy Phillips, (618) 344-7659 or email mephillips@charter.net
Kentucky
Lexington, Kentucky - IFOG of Lexington (Informed Fibromyalgics reversing On Guai) Guaifenesin Recovery Group meets the third Sunday afternoon of every month. If you are interested in attending future meetings please contact Jan Houp at j.houp@insightbb.com.
Louisville, Kentucky IFOG of Louisville (Informed Fibromyalgics reversing On Guai) FMS Recovery Group meets at 3pm the 4th Sunday, every other month at the Friends Meeting House, 3050 Bon Air Ave., Louisville, KY 40205. For more information contact Beth O'Hara: fibroky@gmail.com
Paducah, Kentucky - Western Kentucky and Southern Illinois Fibromyalgia Recovery Group. The focus of this recovery group is to enable each member to take control of their own recovery by following Dr. St. Amand's treatment protocol. Anyone interested in learning about the use of guaifenesin for FMS is welcome. Contact Kaye Walker for information on dates and locations of meetings at: fibrowky@gmail.com.
Michigan
Flushing, Michigan – Please contact Sarah Marchuk for information on meeting schedule at smarchuk@comcast.net or (810) 659-7974
Greenville, Michigan - Greenville Fibromyalgia Hope and Recovery Group meets the last Sunday of every month at the Greenville Community Center at 900 East Kent St. 2:00-4:00PM. This group is to educate about the Guaifenesin Protocol as developed by Dr. Paul St. Amand and to support each other in the use of this treatment. For details contact Deb Kanouse, RN at kanodm@yahoo.com or group website at http://health.groups.yahoo.com/group/greenvillefibrosupport
Sault Ste. Marie, Michigan - Sault Area Fibromyalgia Recovery Group meets the third Sunday of every month at 2 p.m. at the Medical Library of Chippewa County War Memorial Hospital. We also welcome members from the tri-counties and Sault Ste. Marie, Ontario area. This is a group of fibromyalgics who are recovering by following Dr. St. Amand's guaifenesin protocol. For more information contact Cris Roll at crisroll@att.net
West Michigan - Guai Support for West Michigan meets the third Sunday of every month 2pm. At the Thornapple Evang. Cov. Church, 6595 Cascade Rd., SE., Grand Rapids. On the east side near the Kent County airport and M-6, 28th St. and 96 interchanges. Contact Sheri LaPorte at recover.west.mi@comcast.net. We will have a new mapper, a Dr. Scott Newquist, DC 616-464-1091 for appointments. We welcome all who are on the Dr. St. Amand protocol and those who want to learn more as well as family and friends.
Minnesota
Duluth, Minnesota / Superior, Wisconsin - Fibromyalgia Recovery Group The Duluth/Superior Guaifenesin Recovery Group is open to anyone following or interested in learning about Dr. St. Amand’s guaifenesin treatment protocol for fibromyalgia. The group meets monthly at SMDC-Superior, 3500 Tower Avenue, Superior, Wisconsin. We are lucky to have two mappers affiliated with our group. Contact Betty Haubner (218) 879-7427
Golden Valley, Minnesota -Guaifenesin Support Group meets the last Tuesday of every month from 7:00 - 9:00 pm at Courage Center, Education Center Room 1, 3915 Golden Valley Road, Golden Valley, MN please contact Gloria Hutson at gloriahutson@juno.com or (612) 588-9366
St. Paul, Minnesota - FMS/CFS Recovery Group meets 2nd Monday of every month from 7:00-9:00 pm, Epworth United Methodist Church, 1965 Sherwood Ave. E, St. Paul, MN. Contact person: Sharon Marlowe 651-772-2108
Winona, Minnesota - The Winona Guaifenesin Recovery Group meets monthly on Thursday evenings. Contact Anne Louise (Admin Team member) for more information and driving directions. anne-louise@charter.net
New Mexico
Albuquerque, New Mexico - The Albuquerque Guaifenesin Support Group meets the second Tuesday of each month in Room 402 of the Education Building at the Heights Cumberland Presbyterian Church, 8600 Academy NE (Academy and Moon) at 1:00 pm. (Off Academy, turn south on Moon and then an immediate left into the parking lot behind the church. Signs will be posted to Room 402.) Coordinators for the group are Stella Vigil and Erika Gimple. Stella is also a mapper.
New York
New York, New York (West Village) - Fibromyalgia Support Group is a group following the St. Amand guaifenesin protocol. For more information about our meetings, please contact: Linda de Soto at 310-753-5580 or linda.desoto@verizon.net for location and when meetings will be held. Meetings are usually held in Greenwich Village, New York.
North Carolina
Cary, North Carolina
- Our newest North Carolina Guaifenesin Recovery
Group! The Cary F.R.O.G. will hold its' first meeting on Saturday, November 3,
2007. POC: Marita Higgins
maritahiggins@gmail.com
Brevard,
North Carolina - Meets
the third Friday of every month,
7 - 8:30 PM at
Bethany
Baptist Church, 200 Bert Lane. POC for meeting and mapping information is Judy
Nowag --
judynowag@hotmail.com
Fayetteville, North Carolina - (F.R.O.G) Fibromyalgics Recovering On Guaifenesin meets the third Saturday of every month except December, 1:30 at the HealthPLEX, 1930 Skibo Road. Newcomers meet at 1:00. POC for meeting and mapping information is Margaret Silman -- margaretsilman@aol.com
TRIANGLE AREA (Apex), North Carolina - This is a notice of the F.R.O.G.S. (Fibromyalgics Recovering on Guai Support) First Thursdays monthly, 1-4 p.m. at New Horizons Fellowship, Hwy. 55, Apex NC. POC: Lynn Morris or Phyllis Vermillion for more info. or directions avjeffer@bellsouth.net and pvermillion@nc.rr.com.
WILMINGTON, NC - For protocol information Area POC: Marion Mayes marionm0817@mac.com
Pennsylvania
Springtown, Pennsylvania - The Southeastern Pennsylvania Fibromyalgia & Chronic Fatigue Hope & Recovery Group. 2nd. Monday every month, 7PM to 8:30 at the Silver Creek Social Club. For information contact Kim (610) 346-8868 or email mymentor1@verizon.net.
Rhode Island
Warwick, Rhode Island - Fibromyalgia Recovery On Guai (FROG) meets at the Kent County Memorial Hospital (455 Toll Gate Road, Warwick, RI 02886) every 3rd Thursday of the month. We will meet in the Westmoreland Conference Room on the 1st floor from 6-8pm. Contact Jill Myers at (401) 487-3956 or email: ri_guaisupport@hotmail.com. Warwick is located 15 minutes south of Providence, about 20 minutes from Massachusetts and 30 minutes from Connecticut.
South Carolina
Lexington, South Carolina - Guaifenesin Recovery Group meets on the third Thursday of the month at 7:00 pm. The goal of this group is to enable each member to take control of their own recovery. Our focus is solely on Dr. St. Amand's Guaifenesin Protocol. Anyone interested in learning about the use of guaifenesin for FMS is welcome. For more information contact Gretchen Parker, email gretchenparker@earthlink.net
Tennessee
Tennessee, Gatlinburg/Sevier County - Beginning Sunday March 12, we will meet at Gatlinburg Community Center, 2:00-3:00 pm. Then the 3rd Sat. of each month beginning Sat. Mar. 18 (except April 8, due to Easter on 3rd weekend) at Sevierville Community Center, 2:00-3:00 pm. For meeting and mapping info., call Carol at (865) 436-0096.
Texas
Lubbock, Texas - Lubbock Guaifenesin Support Group meets on the fourth Saturday of every other month, 10:30 a.m. at Dr. Funk’s Office, 6816 Slide Road, Ste 13. Please contact Carrie at cfunk@door.net or (806) 687-6222. Or if Carrie is not available, you may contact Sandy at spj4020@odsy.net . When sending an e-mail, please put FMS in subject line.
Wisconsin
Duluth, Minnesota / Superior, Wisconsin - Fibromyalgia Recovery Group The Duluth/Superior Guaifenesin Recovery Group is open to anyone following or interested in learning about Dr. St. Amand’s guaifenesin treatment protocol for fibromyalgia. The group meets monthly at SMDC-Superior, 3500 Tower Avenue, Superior, Wisconsin. We are lucky to have two mappers affiliated with our group. Contact Betty Haubner (218) 879-7427
Tri-State Support Group: http://www.tristateguai.org/index.html
Other Countries
Edmonton, Alberta, Canada - We meet the second Monday of each month at 7:30 pm. For location and more information contact Cheryl gigu@telusplanet.net
New Zealand - Megan Parker's web pages on the Positive Living website offer information on local resources for FMS patients in New Zealand and Australia.
Gotland, Sweden - New Group - very first group meeting is Nov 1 at the Red Cross Kupan in Visby at 6 pm. Contact Deborah Stalek by phone, 0498-264634 or email at deborah@gotland.com
The UK-FMS-GUAI Website at http://ukfmsguai.tripod.com
Subscribe at
http://ukfmsguai.tripod.com/subscribe/subscribepage.htm
Contact Fiona Russell at
trigleann@aol.com. for help and support for FMS sufferers in the
UK and Europe.
Info & buying
Salicylate-Free Products:
For Salicylate-free product lists - www.fibromyalgiatreatment.com/salfree.htm
Dr. Stay's website: www.cleure.com/grace or 1-805-677-5900
www.andrearose.com or 1-888-712-7673
www.illuminarecosmetics.com or 1-800-831-4088
JES Collection - www.jescollection.com ( Has some salicylate-free products that can be used with the guaifenesin protocol (100% Pure Emu Oil AEA certified & Molecularly Distilled-highest quality Emu Oil. Emu Oil works well for pain and is a natural moisturizer, sunscreen and works well for many skin conditions and so much more. CorvalenM has made a difference for many people that have tried it and the life changing testimonials have been wonderful. We continue to search for new products to add to the line. It is difficult to find products without salicylates that are chemically safe.)
www.paulabegoun.com (Has some salicylate-free cosmetics)
Copyright © 2005 Carol Stous Hetler. All rights reserved.
Contact Carol at: chetler@satx.rr.com